Parkinson’s disease is spreading faster than any other neurological condition worldwide, with incidence projected to double in the coming decades, according to a physician and scientist who has specialized in the disease for more than 20 years. The warning comes as singer-songwriter Carly Simon recently announced her own Parkinson’s diagnosis, saying the condition is “not a blessing or a gift.”
Parkinson’s is a progressive disorder affecting the brain, nervous system and muscle control. There is currently no cure. Medications and other symptomatic treatments can help, but the disease worsens over time, the physician wrote, noting that families often fear the loss of a loved one’s independence while patients themselves fear what each new day of progression might bring.
Public understanding of brain health remains limited. The Dana Foundation has reported that while brain health is a top priority for Americans, 66% say they have little or no knowledge about brain health research — with older Americans reporting the lowest levels of understanding.
Five Things To Know
Move every day. Regular exercise supports brain health for everyone, but for people with Parkinson’s, at least 2.5 hours of consistent exercise per week can slow symptom progression and improve physical and emotional well-being. Studies show high levels of regular physical activity are strongly associated with a better clinical course of the disease. The physician said patients have taken up activities ranging from boxing to dance.
Protect heart health. Habits good for the heart — a balanced diet, quality sleep, avoiding smoking — also protect the small blood vessels that supply blood and oxygen to the brain.
Stay socially and mentally engaged. The physician said Parkinson’s has, in some cases, unlocked new artistic interests in patients. Projects that involve interacting with others and require mental effort may help maintain daily function and overall well-being.
Consider sharing the diagnosis. Whether to disclose a Parkinson’s diagnosis is a deeply personal choice. Some patients stay silent out of concern about workplace discrimination, stigma, or losing dignity, but that silence can be isolating. The physician said sharing a diagnosis has, in other cases, deepened bonds with family and friends, with support networks offering walks, games, classes and get-togethers. The Michael J. Fox Foundation offers resources for patients weighing whether to speak openly about their condition.
There is active research underway. Scientists are working on new approaches to the underlying biology of Parkinson’s, including an investigational gene therapy the physician is involved in developing, aimed at slowing disease progression so patients can maintain or improve motor function. Researchers in academia and industry are also advancing molecular neuroscience, gene delivery, imaging and biomarker science. These efforts have not yet resolved the complexity and unpredictability of the disease, but the physician said they offer reason to expect care that moves beyond simply managing symptoms.
“As a doctor, Parkinson’s disease is humbling,” the physician wrote, adding that patients want more from Parkinson’s medicine and a different future after diagnosis. “I do, too.”
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